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Sjogrens Syndrome a free information resource site, provided by almark.net
Sjogren's Syndrome a free information resource site, provided by almark.net
Sjogrens' Syndrome a free information resource site, provided by almark.net; |
Welcome to my free Sjögren's Syndrome Resource site
First of all, let us get the spelling right!
The correct spelling is "Sjögren's", (note the thingy over the 'o' ). I have used both 'Sjogrens's Syndrome' and the abbreivation 'SJS' throughtout, to ensure that people can find this free information resource site using the search engines. I doubt that many people will ever enter "Sjögren's" into a search engine - just to get the correct thingy over the 'o' .
So, What is Sjogren's Syndrome?
Sjogren's (pronounced 'SHOW-grins' and known as 'SJS') is, unfortunately, very poorly understood. Dentist's seem to know more about
it than your typical General Practioner (GP) in the UK. The next
time you visit you dentist, mention that you have (or think you
may have) Sjogren's
Syndrome and you will find that they know all about it. GP's have
so much to cover, they cannot be expected to have a full understanding
of everything, which is why they are called 'General' Practioners.
Not only are the root causes of SJS unknown, but there seems to
be much disagreement on what should form the criteria for diagnosing
Sjogren's Syndrome. There are big differences between the
UK, EEC and even within the US. This is most important for those unfortunate people who, as a
result of SJS, are incapacitated to such an extent that they can
no longer work. Claiming 'disability' support for many SJS sufferers
has proved to be a uphill struggle and that, with their illness,
makes life even more difficult. This web site provides information
that I have hope will help.
All of the information on this site is already in the public domain.
I have created this web site as an information resource. I must
stress I make no money from this site. It's purpose is to inform.
There has been no intention to reproduce any copyrighted information.
If you believe that there is any copyrighted information on this
site, please let me know and I will remove it immediately. Please see my disclaimer.
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